Who we are

Hilde De Keyser

Chief Executive Officer (CEO)

It is inspiring to work together with so many committed people and great minds towards a world where people with CF are at the centre of their own care and CF is no longer an incurable disease.

Elise Lammertyn

Head of Research

Already during my PhD work, I felt so warmly welcomed by the scientific CF community. Now to get to work for and with people with CF and their families, and the organisations that represent them, is really fulfilling and heartwarming. With great pleasure I am at your service.

Claire Francis

Project lead on the Real World Data Programme VERA

I am leading the Real World Data programme for CF Europe and feel passionately that people with CF should be at the centre of what data is collected and have ownership of their data so that they can better partner with their care team.

Jill Bonjean

Outreach Advisor

Effective partnerships are so often key to success. The CF community’s solidarity, skills and commitment to working together are truly inspiring. I’m honored to support CFE to engage companies and other external stakeholders in this work.

Lidia Salvatori

Policy and Communications Manager

Working at CFE, I joined a remarkable community, determined to advocate for the right of people with CF to access the best available care and treatment. As a social researcher, I am interested in better understanding and addressing social and health inequities. I also manage CF Europe's emergency response to the war in Ukraine and curate the organisation's communication strategy.

Jacquelien Noordhoek

President (Netherlands)

With the strong community we have, we’re able to make a difference. That’s what we do: we move mountains.

Stefan Joris

Secretary (Belgium)

Together we can make ourselves heard, solidarity leads to a better care for all!

Marco Magrì

Board member (Italy)

I believe that we are in an important and positive moment for the treatment of Cystic Fibrosis, despite COVID-19 and the Ukraine war slowing down many activities. Today, more than ever, cooperation, skill diversification, and knowledge sharing are essential to achieve the same level of healthcare for all CF patients across Europe. Pushing scientific research forward to identify new drugs, improving digital health and personalized therapies, can transform the quality of life of all people with CF. I’m extremely proud and motivated to be able to contribute to the achievement of these common goals.

Nick Medhurst

Board member (UK)

I believe that, through research, CF can become entirely treatable in my lifetime and during more than 7 years working for the UK’s Cystic Fibrosis Trust (2013-2020), I was privileged to see a major step forward in fighting the disease when new highly effective treatments were developed. I also felt the loss and saw the damage that CF does so I continue my work with CF Europe to represent and defend the interests of people with CF.

Audrey Chansard

Board member (France)

"Because the people who are crazy enough to think they can change the world are the ones who do" – Steve Jobs

Philip Watt

Board member (Ireland)

I see being a board member as a two way process - a chance to help shape policy and research related to CF at a European level and to hear and learn from all the fantastic work happening in other CF associations - we are always stronger together. CFE’s support for people with CF affected by the devastating invasion of Ukraine and war is a good recent example of how we can work together to effect change. Much done-more to do.

Przemysław Marszałek

Board member (Poland)