Who we are
Cystic Fibrosis Europe (CFE) is the federation of national and regional CF Patient Organisations in Europe with members in over 39 countries. Founded at the European CF Conference in Belfast in 2003, CFE is a non profit organisation representing people with CF and their families in Europe. CFE works in close collaboration with other international organisations and is an active partner in several European projects.
Vision, mission and strategy
Vision
CF Europe is striving for people with cystic fibrosis (CF) to live a longer and better life. Our vision is a future where people with CF have access to optimal care. Ultimately, a future where a cure is found and accessed by all people with CF.
Mission
Our mission is to promote and support patient-centered research, best standards of CF care and to represent and defend the interests of people with CF. We make every effort to inform members organisations and support the sharing of best practice while providing tailor-made support to our members.
Strategy
CF Europe aims to be a powerful and representative voice of people with CF in Europe. We champion the best research in line with what people with CF want, fight for better care across Europe and provide support and best practice for CFE member organisations.For more information, please refer to the CFE strategy.
Team & board
CFE Staff

Hilde De Keyser
Chief Executive Officer (CEO)
It is inspiring to work together with so many committed people and great minds towards a world where people with CF are at the centre of their own care and CF is no longer an incurable disease.

Elise Lammertyn
Head of Research
Already during my PhD work, I felt so warmly welcomed by the scientific CF community. Now to get to work for and with people with CF and their families, and the organisations that represent them, is really fulfilling and heartwarming. With great pleasure I am at your service.

Claire Francis
Project lead on the Real World Data Programme VERA
I am leading the Real World Data programme for CF Europe and feel passionately that people with CF should be at the centre of what data is collected and have ownership of their data so that they can better partner with their care team.

Jill Bonjean
Outreach Advisor
Effective partnerships are so often key to success. The CF community’s solidarity, skills and commitment to working together are truly inspiring. I’m honored to support CFE to engage companies and other external stakeholders in this work.

Lidia Salvatori
Policy and Communications Manager
Working at CFE, I joined a remarkable community, determined to advocate for the right of people with CF to access the best available care and treatment. As a social researcher, I am interested in better understanding and addressing social and health inequities. I also manage CF Europe's emergency response to the war in Ukraine and curate the organisation's communication strategy.
Board

Jacquelien Noordhoek
President (Netherlands)
With the strong community we have, we’re able to make a difference. That’s what we do: we move mountains.

Stefan Joris
Secretary (Belgium)
Together we can make ourselves heard, solidarity leads to a better care for all!

Marco Magrì
Board member (Italy)
I believe that we are in an important and positive moment for the treatment of Cystic Fibrosis, despite COVID-19 and the Ukraine war slowing down many activities. Today, more than ever, cooperation, skill diversification, and knowledge sharing are essential to achieve the same level of healthcare for all CF patients across Europe. Pushing scientific research forward to identify new drugs, improving digital health and personalized therapies, can transform the quality of life of all people with CF. I’m extremely proud and motivated to be able to contribute to the achievement of these common goals.

Nick Medhurst
Board member (UK)
I believe that, through research, CF can become entirely treatable in my lifetime and during more than 7 years working for the UK’s Cystic Fibrosis Trust (2013-2020), I was privileged to see a major step forward in fighting the disease when new highly effective treatments were developed. I also felt the loss and saw the damage that CF does so I continue my work with CF Europe to represent and defend the interests of people with CF.

Audrey Chansard
Board member (France)
"Because the people who are crazy enough to think they can change the world are the ones who do" – Steve Jobs

Philip Watt
Board member (Ireland)
I see being a board member as a two way process - a chance to help shape policy and research related to CF at a European level and to hear and learn from all the fantastic work happening in other CF associations - we are always stronger together. CFE’s support for people with CF affected by the devastating invasion of Ukraine and war is a good recent example of how we can work together to effect change. Much done-more to do.

Przemysław Marszałek
Board member (Poland)
CFE Members
Azerbaijan
Public Association for Helping Cystic Fibrosis Patients (KİFYİB)
bosnia-herzegovina
Association of cystic fibrosis in Bosnia and Herzegovina, Udruženje za cističnu fibrozu u Bosni i Hercegovini
WebsiteCroatia
Drustvo za cisticnu fibrozu – Hrvatska Cystic fibrosis society – Croatia (CF Croatia)
WebsiteCroatia
Croatian Cystic Fibrosis Association (CF CRO) Hrvatska udruga oboljelih od cistične fibroze (Croatian)
WebsiteCyprus
Cyprus Cystic Fibrosis Association
kazachstan
Germany
DCFH
Macedonia
Zdruzenie za Cisticna Fibroza
Poland
Polskie Towarzystwo Walki z Mukowiscydozą
Portugal
ANFQ – Associação Nacional de Fibrose Quística (ANFQ – National Association for Cystic Fibrosis)
WebsiteCF Hilfe OÖ (Cystische Fibrose Hilfe Oberösterreich)
WebsiteCF Austria (Cystische Fibrose Hilfe Österreich)
WebsiteCF-Hilfe Wien
WebsiteCF Team Tirol und Vorarlberg
WebsiteCF-Clearly Future
WebsitePublic Association for Helping Cystic Fibrosis Patients (KİFYİB)
Muco vzw
WebsiteAssociation of cystic fibrosis in Bosnia and Herzegovina, Udruženje za cističnu fibrozu u Bosni i Hercegovini
WebsiteCystic Fibrosis Association Bulgaria
WebsiteDrustvo za cisticnu fibrozu – Hrvatska Cystic fibrosis society – Croatia (CF Croatia)
WebsiteCroatian Cystic Fibrosis Association (CF CRO) Hrvatska udruga oboljelih od cistične fibroze (Croatian)
WebsiteCyprus Cystic Fibrosis Association
Czech Cystic Fibrosis Association/Klub nemocnych cystickou fibrozou, o.s.)
WebsiteThe Danish Cystic Fibrosis Association
WebsiteEstonian Cystic Fibrosis Society
WebsiteSuomen CF-yhdistys ry. (The CF Association in Finland )
WebsiteVaincre la Mucoviscidose
WebsiteMukoviszidose e.V.
WebsiteDCFH
Hellenic CF Association
WebsiteAssociation for cystic fibrosis Greece
WebsiteCF Betegek Egyesülete – Association of CF Patients
WebsiteCystic Fibrosis Association of Ireland (CFAI)
WebsiteCystic Fibrosis Foundation of Israel
WebsiteLega Italiana Fibrosi Cistica (LIFC)
WebsiteAssociation for Persons with Cystic Fibrosis in Kosovo
WebsiteCystic Fibrosis Society of Latvia
WebsiteLithuanian Cystic Fibrosis Asociacion
WebsiteAssociation Luxembourgeoise de Lutte contre la Mucoviscidose ALLM
WebsiteZdruzenie za Cisticna Fibroza
National Association of Cystic Fibrosis in Moldova
WebsiteASSOCIATION FOR HELP AND SUPPORT FOR PEOPLE WITH CF MONTENEGRO-CG MONTENEGRO
WebsiteNederlandse Cystic Fibrosis Stichting
WebsiteNorwegian cystic fibrosis association
WebsitePolish Society Against Cystic Fibrosis
WebsitePolskie Towarzystwo Walki z Mukowiscydozą
Polish CF Foundation, Matio Foundation
WebsiteANFQ – Associação Nacional de Fibrose Quística (ANFQ – National Association for Cystic Fibrosis)
WebsiteAsociata de Fibroza Chistica Din Romania (Romanian Cystic Fibrosis Association)
WebsiteCF Russia
WebsiteInterregional NGO “Help to CF patients”
WebsiteAssociation for Help and Support to people with Cystic fibrosis of Serbia
WebsiteSlovak CF Association
WebsiteDruštvo za cistično fibrozo Slovenije
WebsiteFederación Española de Fibrosis Quística, CF Spain
WebsiteSwedish CF Association – Riksförbundet Cystisk Fibros
WebsiteFonden Citronfjärilen
WebsiteCystic Fibrosis Switzerland (CFS)
WebsiteKistik Fibrozis Yardımlaşma ve Dayanışma Derneği
WebsiteCystic Fibrosis Trust
WebsiteUkrainian Association of care of patients with cystic fibrosis
WebsiteHow we are funded
Funding for CF Europe comes from CFE Member organisations as well as public and private contributors. CFE accepts financial and non-monetary support with the mutual understanding that CFE maintains its independence and makes choices based exclusively on the needs of people with CF.
CFE’s General Assembly meets annually and approves the organisation’s Annual and Financial Reports. CFE’s accounts are also audited yearly.
CFE thanks CFE members, CFE corporate partners, the European Commission, foundations and individual contributors who help make CFE’s work possible.