Support to members
CFE informs its members on the progress of activities in CF research, care and lobbying, as well as providing them with general information about developments within the CF community. In addition, CFE enables the sharing of best practice by organizing workshops and learning platforms.
Representation on the EU level
CFE represents the CF community on the European level, keeping CF on the agenda of the EU institutions. To do this, we partner with other European patient organisations.
CF Europe membership is composed of national CF patient organisations. The needs of the PO’s differ widely across Europe. CFE wants to inform all members on what is important for them, no matter where they are. One way to keep up to date is by signing up to our newsletter.
We also develop our conferences and events programmes with the aim of maximising our impact and supporting our strategic objectives. Annually, we hold membership meetings and workshops to provide members with the opportunity to exchange expertise and experiences.
Provide tailor-made support
CFE provides financial support to members wishing to attend CFE meetings and CFE workshops. We provide hands-on support in organising local or regional conferences, and local lobbying. In addition, CFE is the contact point for its members for any questions raised or support needed by members.