CFE document library

Cystic Fibrosis Europe wants to contribute to informing its members and people with CF across Europe and providing accessible resources. This page is under construction but you will soon find here a repository of useful documents, conference materials, health recommendations and links to various sites of interest. 


Useful documents

How the web and social media can support patient associations ECFS

Stuart Elborn Challenges in CF Care and research parents Dublin

Macedonian CF Association

Martynas Sostauskas

Recommendations to avoid cross infections

Anti Cross-Infection Requirements

Hygiene Guidelines

Conference/Meeting Recommendations

Medical Statement Infection Status

Conference Materials

Registries and Clinical Trials: Opportunities for better care – contains outdated information CF & Home IV treatment

Cystic Fibrosis and infection control

Cystic Fibrosis and nursing

Cystic fibrosis: From the gene to the disease

Lung Transplantation For Cystic Fibrosis

Treating lower and upper airway infections in CF


Allied health professionals

AHP Nursing Research

European CF Nutrition Group

International Physiotherapy Group

ECORN-CF – Expert advice on cystic fibrosis

Associated Organisations

European Society for Paediatric Gastroenterology, Hepatology and Nutrition

Cystic fibrosis International Nurse Specialist Group

European CF Nutrition Group

Other Sites of Interest

European Cystic Fibrosis Clinical Trial Network

CFTR Antibodies

Cochrane Collaboration

eCysticFibrosis Review