New CF centres twinned to improve care across Europe

 

We are excited to announce the expansion of ECFS/CFE Twinning Project, which aims to build up friendships and partnerships between CF communities in different countries.

It does so, first of all, by twinning one expert CF centre with a long-term outstanding history in CF care (“mentor site”) to a “mentee site”, a centre with the ambition to improve clinical outcomes through the guidance, advice and collaboration of a well-established CF centre. 

Nine twins were established in 2020. After launching a new call to CF care providers in Europe last year, we had an impressive number of applications. The Twinning Expansion Project team is pleased to announce 21 new mentee CF Centres being mentored by 19 CF Centres. 

 

CF centres twinned in 2024

Mentee Mentor
Tirana, AlbaniaRome, Italy
Yerevan Muratsan, ArmeniaZurich, Switzerland
Yerevan Arabkir, ArmeniaZurich, Switzerland
Sofia, BulgariaRotterdam, the Netherlands
Nicosia, CyprusMilan, Italy
Zagreb, CroatiaCopenhagen, Denmark
Tallin, EstoniaCardiff, UK
Tartu, EstoniaCardiff, UK
Tbilisi, GeorgiaHanover, Germany
Prishtina, KosovoUtrecht, the Netherlands
Riga, LatviaBordeaux, France
Skopje, North MacedoniaBerlin, Germany
Banska Bystrica, SlovakiaManchester, UK
Bratislava, SlovakiaBarcelona, Spain
Ankara (Paediatric), TurkeyLeeds (Paediatric), UK
Ankara Adult, TurkeyLeeds (Adult), UK
Gaziantep, TurkeyMunich, Germany
Istanbul, TurkeyLondon (Kings), UK
Ivano-Frankivsk, UkraineMarseille, France
Kyiv, UkrainePetah Tikva, Israel
Vinnytsia, UkraineMontpellier, France

 

CF centres twinned in 2020

Mentee Mentor
Bucharest, RomaniaLeuven, Belgium
Cluj-Napoca, RomaniaBrussels, Belgium
Lviv, UkraineLondon (Brompton), UK
Odessa, UkraineLyon, France
Zaporizhzhia, UkraineJerusalem, Israel
Varna, BulgariaSouthampton (Paediatric), UK
Athens, GreeceSouthampton (Adult), UK
Thessaloniki, GreeceSouthampton (Adult), UK
Kozle, North MacedoniaCambridge (Adult), UK

 

More about the Twinning Expansion Project 

Working together to improve CF care throughout Europe 

The Twinning Expansion Project (TEP) is a three-year (2024-2026) collaboration between CFE and ECFS, building on the ECFS Twinning Project (2020) which aimed to improve access to high quality, multidisciplinary CF care and optimal treatment. 

The aim of the Twinning Expansion Project is to address discrepancies in clinical outcome for people with CF across Europe. Building long-term collaborative partnerships between mentors and mentee sites and addressing specific needs of the mentee sites, the Twinning Expansion Project will optimise patients’ clinical outcomes. 

Patient Organisations begin twinning! 

A novel aspect of the Twinning Expansion Project is that it will also engage patient organisations, who play a pivotal role in identifying and addressing unmet needs (e.g. adult care, trained healthcare professionals), facilitating communication, and signalling possible mentee sites. Well-resourced patient organisations with advanced advocacy, digital expertise and capabilities will provide guidance to those patient organisations needing more support or training. As well as the twinned pairs building their partnership, the project also aims to support and facilitate networking between patient organisations and CF centres participating in the project. 

Aims of the Twinning Expansion Project

1. Establish new CF centre mentor and mentee sites with the aim of facilitating collaborations and exchanges between the twinned pairs.
2. Identify unmet needs in CF care in the mentee sites and formulate feasible goals.
3. Grant access to ECFS learning resources to participating CF centres and translating these resources into relevant languages.
4. Facilitate knowledge sharing and networking opportunities between CF centres and patient organisations in different regions. 

How twins will meet 

It is expected of the new twinning pairs that the mentor site will organise at least one visit to the mentee site in 2024 (if geopolitical conditions allow it). The visit will include a CF physician and possibly a CF nurse and/or other CF team members. The aim of the visit is to establish a partnership, get an overview of the mentee site, discuss unmet needs and opportunities, and build on this knowledge to develop further twinning. The duration of the Twinning Expansion Project for new sites is one year. After one year, a summary report will be prepared and submitted jointly by both sites and will serve as the basis for the continuation of the funding. 

 

For more information please contact: info@cf-europe.eu