ECFS Patient Registry

The European Cystic Fibrosis Society (ECFS) Patient Registry collects patient data that is valuable to CF clinical caregivers and researchers, yet the value to patients is often not that clear. CF Europe is a permanent member of the ECFS Patient Registry Executive Committee ensuring that patients and their families directly benefit from the information collected and analysed by the ECFS Patient Registry.

In order to improve the patient friendliness of the ECFS Patient Registry, CF Europe is contributing to several projects, such as the At-a-glance annual reports, country-specific posters, and the visibility of the ECFS Patient Registry on social media.

For more information, please visit the website of the ECFS Patient Registry


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