European Reference Networks
European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialised treatment and concentrated knowledge and resources.
CF Europe is actively involved in the ERN-Lung, the European Reference Network of Rare Lung Diseases. Both in the general network and in the sub network for CF, CFE represents the patient views by participating in the European Patient Advocacy Group (ePAG).