Since 2009, CF Europe and cystic fibrosis patient organisations across Europe have marked European Cystic Fibrosis Day on 21st November, to raise awareness on cystic fibrosis (CF), a life threatening inherited disease affecting over 54 000 people in Europe.
Although 1 in 30 Europeans carry the gene that causes CF, few people know about it. This disease affects the lungs, digestive system and other organs, making it necessary for people with CF to receive regular care from a multidisciplinary team in a specialised CF clinic. While a cure has not been found yet, access to adequate and innovative treatments, enables people with CF to live longer, healthier lives. Everyday, we work to ensure that the needs and voices of people with CF are at the centre of research and policy discussions.
During European Cystic Fibrosis Week (20-25 November), we want to make CF visible and highlight the precious efforts of patient advocates, who work to ensure that all people with CF across Europe have access to the best available care and treatment.