A questionnaire that measures how cystic fibrosis impacts quality of life, including health, daily life, well-being, and CF symptoms.
The Cystic Fibrosis Questionnaire-Revised (CFQR) is a questionnaire that people with cystic fibrosis fill out. This kind of questionnaire is sometimes called a “patient-reported outcome” or a “quality of life measure.”
The CFQR measures how much cystic fibrosis impacts areas of a person’s life, like health, daily life, well-being, and cystic fibrosis symptoms. The respiratory section of the questionnaire measures the impact of cystic fibrosis on symptoms like cough and mucus.
The CFQR is often used in clinical trials. Participants can fill it out at different points during the trial. Looking at how the CFQR score changes over time can show if a treatment improves or worsens how much cystic fibrosis impacts someone’s life.