Category: Uncategorized

The Twinning Expansion Project

The Twinning Expansion Project

New CF centres twinned to improve care across Europe   We are excited to announce the expansion of ECFS/CFE Twinning Project, which aims to build up friendships and partnerships between CF communities in different countries. It does so, first of all, by twinning one expert CF centre with a long-term outstanding history in CF care […]

CF Europe’s Urgent Fundraising Campaign: Bringing Hope to People with Cystic Fibrosis in Gaza

CF Europe’s Urgent Fundraising Campaign: Bringing Hope to People with Cystic Fibrosis in Gaza

Amid conflict and chaos, people living with very vulnerable health conditions, including those with cystic fibrosis (CF) in Gaza face additional challenges and are in desperate need of food, water and medication. The health of people with CF and other respiratory diseases are doubly impacted by fumes and dust resulting from bombardments.     CF Europe is […]

Why does the reform of the EU Pharmaceutical Legislation matter for people with CF?

Cystic Fibrosis Europe (CF Europe) is committed to advancing the interests and well-being of people with cystic fibrosis (CF) across Europe. As advocates for the CF community, we recognize the importance of collective efforts in shaping the future of pharmaceutical legislation within the European Union (EU). In line with the recommendations put forth by EURORDIS […]

Access to treatment and care: a matter of health equity

Access to treatment and care: a matter of health equity

Since the introduction of CFTR modulators over ten years ago, treatment and care of people living with cystic fibrosis (CF) has significantly changed. These treatments targeting the root cause of CF has led to better health outcomes and improved quality of life (1,2). The European Medicines Agency, who are responsible for approving treatments across Europe, […]

European Commission approves extension of Kaftrio to 2-5 year olds

CFE is pleased to let you know that European Commission (EC) has today (23 November) granted approval for the label expansion of Kaftrio for the treatment of children with cystic fibrosis (CF) aged 2 to 5 years old who have at least one F508del mutation in the CFTR gene. This is good news for European countries whose patients already have access […]

Creon shortages: a European problem  

In September, after some of our member organisations reported Creon shortages in certain countries, CF Europe launched a short survey to get a broad overview of the problem at the European level. More than 522 people with cystic fibrosis and their relatives from 30 countries completed the survey.   Thank you to all those who responded, […]

Update: supporting people with CF affected by the Israel-Gaza war

We are deeply saddened by the recent escalation of violence in Israel and Gaza, and we join all those calling for a ceasefire to allow humanitarian assistance into Gaza.   We are concerned for the lives of people with cystic fibrosis in the region, mostly children, doubly impacted by war. In addition to fear, loss and trauma, war impacts the possibility to access vital care, treatment, water and appropriate […]

Statement of support for people with CF affected by the Israel-Gaza war

CFE is very concerned about attacks on or near hospitals and health centres and areas of high population in both Gaza and Israel and the concomitant threat to all people with very vulnerable health conditions, including those with cystic fibrosis (CF) living in the region. We understand the very high tensions that currently exist between […]