The CF community

SURVIVAL COMPARISON OF PATIENTS WITH CYSTIC FIBROSIS IN CANADA AND THE UNITED STATES: A POPULATION-BASED COHORT STUDY

Authors: Stephenson AL, Sykes J, Stanojevic S, Quon BS, Marshall BC, Petren K, Ostrenga J, Fink AK, Elbert A, Goss CH.   What was your research question? In 2011, the […]

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CHARACTERIZATION OF MISSING DATA IN CLINICAL REGISTRY STUDIES

Authors: Mendelsohn AB, Dreyer NA, Mattox PW, Su Z, Swenson A, Li R, Turner JR, Velentgas P.   What was your research question? The primary objective of this study was […]

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DISPARITIES IN MORTALITY OF HISPANIC CYSTIC FIBROSIS PATIENTS IN THE UNITED STATES: A NATIONAL AND REGIONAL COHORT STUDY

Authors: Rho J, Ahn C, Gao A, Sawicki G, Keller A, Jain R.   What was your research question? Is there a difference in survival rates in Hispanic people with […]

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ALIGNING PATIENTS’ NEEDS TOWARDS A COMPREHENSIVE CF RESEARCH PROGRAM

Authors: Jacquelien J. Noordhoek a, Vincent A.M. Gulmans a, Harry G.M. Heijerman b, Cornelis K. van der Ent b Affiliations: a Dutch Cystic Fibrosis Foundation (NCFS) b University Medical Center […]

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IMPACT OF A PROGRAM ENSURING CONSISTENT RESPONSE TO ACUTE DROPS IN LUNG FUNCTION IN CHILDREN WITH CYSTIC FIBROSIS

Authors: Michael S. Schechter, H. Joel Schmidt, Ron Williams, Robert Norton, Deanna Taylor, Andrea Molzhon Affiliations: Children’s Hospital of Richmond at Virginia Commonwealth University 1000 East Broad Street, Richmond, VA […]

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ASSESSING DIFFERENCES IN MORTALITY RATES AND RISK FACTORS BETWEEN HISPANIC AND NON-HISPANIC PATIENTS WITH CYSTIC FIBROSIS IN CALIFORNIA

Article citation: Buu M, Sanders L, Mayo J, Milla C, Wise P. Assessing differences in mortality rates and risk factors between Hispanic and non-Hispanic patients with cystic fibrosis in California. […]

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THE CYSTIC FIBROSIS FOUNDATION PATIENT REGISTRY. DESIGN AND METHODS OF A NATIONAL OBSERVATIONAL DISEASE REGISTRY

Citation: Knapp EA, Fink AK, Goss CH, Sewall A, Ostrenga J, Dowd C, Elbert A, Petren KM, Marshall BC. Annals of the American Thoracic Society. 2016 Jul;13(7):1173-9.   What was […]

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SOCIAL SUPPORT IS ASSOCIATED WITH FEWER REPORTED SYMPTOMS AND DECREASED TREATMENT BURDEN IN ADULTS WITH CYSTIC FIBROSIS

Authors: Kassie Flewelling1; Deborah Sellers2; Gregory Sawicki3; Walter Robinson1; Edward Dill1 Affiliations: 1University of Colorado Denver, 2Cornell University, 3Harvard Medical School   What was your research question? The current study […]

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THE GEOGRAPHIC IMPACT ON HOSPITALIZATION IN PATIENTS WITH CYSTIC FIBROSIS

Authors: Kopp BT, Nicholson L, Paul G, Tobias J, Ramanathan C, Hayes D Jr   What was your research question? We looked at whether geographic location influences hospitalizations for pulmonary […]

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