Psychosocial

MEASURING RECOVERY IN HEALT-RELATED QUALITY OF LIFE DURING AND AFTER PULMONARY EXACERBATIONS IN PATIENTS WITH CYSTIC FIBROSIS

Authors: Patrick A. Flume,a Ellison D. Suthoff,b Mark Kosinski,c Gautham Marigowda,d Alexandra L. Quittnere Affiliations: aMedical University of South Carolina, 96 Jonathan Lucas Street, 812-CSB, Charleston, SC 29425 USA; bFormerly […]

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THE IMPACT OF CYSTIC FIBROSIS-RELATED DIABETES ON HEALTH-RELATED QUALITY OF LIFE

Authors: Eugenie Kwonga, Sameer Desaia, Louise Chongb, Kathleen Leea, Jie Zhenga, Pearce G. Wilcoxa,c, Bradley S. Quona,c Affiliations: aDivision of Respiratory Medicine, Department of Medicine, University of British Columbia, Vancouver, […]

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CORRESPONDENCE BETWEEN SYMPTOMS AND PREFERENCE-BASED HEALTH STATUS MEASURES IN THE STOP STUDY

Authors: Laura S. Golda, Donald L. Patrickb, Ryan N. Hansenc, Valeria Beckettd, Christopher H. Gosse and Larry Kesslerb Affiliations: aDepartment of Radiology, University of Washington, Seattle, Washington, United States bDepartment […]

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BREATHLESSNESS CATASTROPHIZING RELATES TO POORER QUALITY OF LIFE IN ADULTS WITH CYSTIC FIBROSIS

Authors: Danijela Maras1,2 MA, Louise Balfour1,2,3,4 PhD, C.Psych, Giorgio A. Tasca1,2,4  PhD, C.Psych, Ena Gaudet2 RN, Shawn D. Aaron2,4,5 MD, FRCPC, William D. Cameron2,4,5 MD, FRCPC, Smita Pakhale2,4,5 MD, FRCPC, […]

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MENTAL HEALTH SCREENING IN CYSTIC FIBROSIS CENTERS ACROSS EUROPE

Authors: J. Abbott1, T. Havermans2, S. Jarvholm3, E. Landau4, Y. Prins5, U. Smrekar6, D. Staab7, L. Verity1, M. Verkleij8 on behalf of the ECFS Mental Health Working Group. Affiliations: 1University […]

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SOCIAL SUPPORT IS ASSOCIATED WITH FEWER REPORTED SYMPTOMS AND DECREASED TREATMENT BURDEN IN ADULTS WITH CYSTIC FIBROSIS

Authors: Kassie Flewelling1; Deborah Sellers2; Gregory Sawicki3; Walter Robinson1; Edward Dill1 Affiliations: 1University of Colorado Denver, 2Cornell University, 3Harvard Medical School   What was your research question? The current study […]

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DO PATIENTS WITH CYSTIC FIBROSIS PARTICIPATING IN CLINICAL TRIALS DEMONSTRATE PLACEBO RESPONSE? A META-ANALYSIS

Authors: Julie Cotona,b, Ha-Hai Lea, Victor Veuilleta, Perrine Janiaudc, Michel Cucheratd, Behrouz Kassai-Koupaia,e, François Gueyffiera,e, Philippe Reixa,b. Affiliations: aUMR 5558 CNRS, Equipe EMET. Université Claude Bernard Lyon 1, Lyon France […]

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