News

CTN annual report 2019 now available

The ECFS Clinical Trial Network has just published its 2019 annual report. In the 2019 ECFS Clinical Trial Network annual report, you will find more information about the activities of […]

 Read more

CHMP positive opinion for Triple Combination of CFTR modulators

We are pleased to inform you that the CHMP, the European Committee for Medicinal Products for Human Use, has given a positive opinion for the use of the triple combination […]

 Read more

ECFS / CF Europe awarded three Post-Doctoral Research Fellowships!

With the aim to foster basic and translational research on CF, the ECFS and CF Europe organised a joint call for applications for their new Post-Doctoral Research Fellowship programme. > […]

 Read more

ECRD2020 – The conference on rare diseases happened online on 14-15 May 2020

  The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Due to the Covid-19 pandemic, […]

 Read more

First site initiation for OligoGpivotalCF in Austria

OligoGpivotalCF is about to start! On 6 May 2020 the first site was initiated in Wels, Austria, and more site initiation visits are planned for the coming months. Pending the […]

 Read more

CF Europe requests that EMA consider a conditional marketing authorisation for the triple combination

In February, we appealed to the EMA to review the latest triple combination modulator therapy, elexacaftor–tezacaftor–ivacaftor, with a sense of urgency. Today, the urgent need for this therapy could not […]

 Read more

A multinational report to characterise SARs-CoV-2 infection in people with cystic fibrosis

  Authors: Rebecca Cosgriffa, Susannah Ahernb, Scott C. Bellc, Keith Brownleea, Pierre-Régis Burgeld, Cass Byrnese, Harriet Corvolf, Stephanie Y. Chengg, Alexander Elberth, Albert Faroh, Christopher H. Gossi, Vincent Gulmansj, Bruce […]

 Read more

OligoGpivotalCF and Covid-19

AlgiPharma CF Clinical Trial Operations in Europe on hold Regulatory and ethical approvals have been received from Austria and UK, and approvals are expected to follow soon in Germany and […]

 Read more

Young Investigators give research a breath of fresh air!

The European Young Investigators Meeting of cystic fibrosis (CF) researchers was held in Paris at the end of February. It was hosted by the French CF Association ‘Vaincre la Mucoviscidose’ […]

 Read more

CF & COVID-19 (corona)

The outbreak of the COVID-19 virus in Europe is causing concerns for everyone and especially so for people with CF and their carers. This is why we want to provide […]

 Read more

Our letter to EMA to support the evaluation of the triple combination of CFTR modulators

On behalf of the 48 national Associations in Europe, representing people with CF and their families, CF Europe has sent a letter to the Chair and the Rapporteurs at EMA […]

 Read more

First phase of the HIT-CF-Europe project completed successfully

Today, CF Europe is proud to announce, on behalf of the HIT-CF consortium, the successful completion of the first phase of the project with the collection of biopsies from 502 […]

 Read more

CFE is recruiting!

CF Europe and the ECFS Patient register join forces to hire an Administration and Communication Assistant. This person will work 50% for CF Europe and 50% for the ECFS-PR. If […]

 Read more

Looking for people with CF to participate in an interview study into opinions and preferences about the (long-term) storage of organoids for medical research

Are you familiar with ‘mini-guts’ (organoid technology) grown from stem cells and their potential for CF precision medicine? Are you fluent in English and have you donated stem cells – […]

 Read more

The 2017 annual report of the ECFS Clinical Trial Network is now available!

The ECFS-CTN has released its 2017 annual report. Not only does it come in a new design, it is also the first report based on the detailed and critical input […]

 Read more

Survey patient projects by ECFSPR and CF Europe

The European CF Patient Registry (ECFSPR) and CF Europe have been working closely together in the past years to increase the visibility of the ECFSPR within the CF community. Several […]

 Read more

CF Research News now on CF Europe website

From now on, the CFE website features CF Research News, which are layman’s language summaries of recent work published in the Journal of Cystic Fibrosis. Via the Google Translate bar, […]

 Read more

13th European CF Young Investigator Meeting (EYIM)

The European CF Young Investigator Meeting (EYIM) was launched in 2007 by 5 patient organizations (Belgium, France, Germany, Italy, The Netherlands) in collaboration with the ECFS and the Medical Faculty […]

 Read more

9th South Eastern European CF conference

CF Europe is happy to announce that the 9th South Eastern European CF Conference will take place on the 16th and 17th of November in Slovenia! More details and information […]

 Read more

Insights into the cystic fibrosis care in Eastern Europe

In order to gain more insight into the standards of CF care in Eastern Europe, one CF professional and one CF patient representative per country were surveyed. The results of […]

 Read more

The European CF Patient Registry has published its 2016 report!

You can find the full ECFSPR report here. Also available is the At-a-glance report 2016, with key information for people with CF and their families. On the ECFSPR website, also […]

 Read more

HIT CF – project launched!

In January 2018 the HIT CF project kicked off. This European project brings together researchers, doctors, pharmaceutical companies and patient representatives with the aim to develop ‘personalized treatments’ for Cystic […]

 Read more

New at-a-glance report of the ECFS-PR online

The ECFS-PR has launched its at-a-glance report 2015 with key information of the Annual Report, designed for people with CF and their families. You can find the at-a-glance report here: […]

 Read more

New At-A-Glance Report From The European CF Registry Available

The ECFS Patient Registry is very pleased to present the At-a-Glance Report 2014 with key-information from the European Annual Data Report 2014. The At-a-glance guide is created, in  a joint […]

 Read more

Journal Of CF Research News Now Available In Lay Language

Bridging the gap between people with CF and researchers investigating CF is an ongoing challenge. The ECFS made an important step on the website ‘CF Research News’ where they provide […]

 Read more

Contact information

Subscribe to newsletter