OligoGpivotalCF and Covid-19
AlgiPharma CF Clinical Trial Operations in Europe on hold Regulatory and ethical approvals have been received from Austria and UK, and approvals are expected to follow soon in Germany and […]
Presentations from the South-Eastern European CF Conference new online!
You can now find all presentations given by the international experts during the 9th South-Eastern European Conference in Belgrade last November below. Do not hesitate to contact us if you […]
Looking for people with CF to participate in an interview study into opinions and preferences about the (long-term) storage of organoids for medical research
Are you familiar with ‘mini-guts’ (organoid technology) grown from stem cells and their potential for CF precision medicine? Are you fluent in English and have you donated stem cells – […]
The 2017 annual report of the ECFS Clinical Trial Network is now available!
The ECFS-CTN has released its 2017 annual report. Not only does it come in a new design, it is also the first report based on the detailed and critical input […]
Survey patient projects by ECFSPR and CF Europe
The European CF Patient Registry (ECFSPR) and CF Europe have been working closely together in the past years to increase the visibility of the ECFSPR within the CF community. Several […]
CF Research News now on CF Europe website
From now on, the CFE website features CF Research News, which are layman’s language summaries of recent work published in the Journal of Cystic Fibrosis. Via the Google Translate bar, […]
13th European CF Young Investigator Meeting (EYIM)
The European CF Young Investigator Meeting (EYIM) was launched in 2007 by 5 patient organizations (Belgium, France, Germany, Italy, The Netherlands) in collaboration with the ECFS and the Medical Faculty […]
9th South Eastern European CF conference
CF Europe is happy to announce that the 9th South Eastern European CF Conference will take place on the 16th and 17th of November in Slovenia! More details and information […]
Insights into the cystic fibrosis care in Eastern Europe
In order to gain more insight into the standards of CF care in Eastern Europe, one CF professional and one CF patient representative per country were surveyed. The results of […]
The European CF Patient Registry has published its 2016 report!
You can find the full ECFSPR report here. Also available is the At-a-glance report 2016, with key information for people with CF and their families. On the ECFSPR website, also […]
HIT CF – project launched!
In January 2018 the HIT CF project kicked off. This European project brings together researchers, doctors, pharmaceutical companies and patient representatives with the aim to develop ‘personalized treatments’ for Cystic […]
New At-A-Glance Report From The European CF Registry Available
The ECFS Patient Registry is very pleased to present the At-a-Glance Report 2014 with key-information from the European Annual Data Report 2014. The At-a-glance guide is created, in a joint […]
Journal Of CF Research News Now Available In Lay Language
Bridging the gap between people with CF and researchers investigating CF is an ongoing challenge. The ECFS made an important step on the website ‘CF Research News’ where they provide […]