Standards of care

Standards of care for patients with cystic fibrosis: a European Consensus
Cystic Fibrosis Worldwide / CF Europe Conference.
CRETE 2005.
Dr Jim Littlewood.

Main topics:
• Concerns of UK families and patients
• Specialist CF Centres
• The CF Team
• CF Centre requirements
• Other Functions of a CF Centre
• Outpatient clinic
• Inpatient facilities required
• Home care – Nurse, Dr & Family
• Transition to adult care
• Neonatal screening
• Hospital care for adults with CF
• Specific problems for discussion or referral
• Successful CF doctors



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