Lidia Salvatori

We were thrilled to share some very positive news last Friday (28th February) and we know that many in the CF community were excited to hear the news!    After a long wait and a lot of effort from the CF community, this is a moment of hope that we must celebrate.   The EMA’s Committee […]

The European Cystic Fibrosis Society (ECFS) and Cystic Fibrosis Europe (CFE) have jointly submitted a request to the European Medicines Agency (EMA) to expand the approval of Kaftrio® (elexacaftor/tezacaftor/ivacaftor) for individuals with cystic fibrosis (CF) who have non-F508del CFTR variants. You can read the full letter here: ECFS-CFE_LetterCHMP re ETI_120225 Cystic fibrosis, a genetic disorder […]

As advocates for the Cystic Fibrosis (CF) community, CF Europe is committed to facilitating the approval and equitable access to life-enhancing and life-saving therapies for all people living with CF in Europe. Today, we urge the European Medicines Agency (EMA) to extend the current license agreement of Kaftrio, which is proven to be safe and […]

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Cystic Fibrosis Europe (CF Europe) is deeply committed to promoting Diversity, Equity and Inclusion (DEI) within its organization and across the broader cystic fibrosis (CF) community Diversity As a European umbrella organization, CF Europe places respectful cross-cultural communication and cultural awareness at the core of its mission. Recognizing the diverse backgrounds, cultures, and experiences of […]

Press Release 3rd December 2024 CF Europe, representing cystic fibrosis (CF) patient associations across Europe, urges the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency to broaden access to Kaftrio for all individuals with CF, regardless of their genetic variant. Currently, treatments like Kaftrio are approved based on evidence linked […]

As part of the Twinning Expansion Project, we are holding the South Eastern European CF Conference in Cluj-Napoca, Romania from Thursday 24th – Saturday 26th October 2024. The Conference is being organised jointly by CF Europe, ECFS and the Romanian patient organisations: The Together for Patrick Association and Asociata de Fibroza Chistica Din Romania.  You […]

New CF centres twinned to improve care across Europe   We are excited to announce the expansion of ECFS/CFE Twinning Project, which aims to build up friendships and partnerships between CF communities in different countries. It does so, first of all, by twinning one expert CF centre with a long-term outstanding history in CF care […]

We at CF Europe remain committed to advocating for the right to health and well-being of individuals living with Cystic Fibrosis (CF) across borders. We witness everyday how the advocacy efforts of the global patient community lead to tangible improvements in the lives of individuals with CF. We saw the global CF community coming together […]

Amid conflict and chaos, people living with very vulnerable health conditions, including those with cystic fibrosis (CF) in Gaza face additional challenges and are in desperate need of food, water and medication. The health of people with CF and other respiratory diseases are doubly impacted by fumes and dust resulting from bombardments.     CF Europe is […]