Cystic Fibrosis Europe is the federation of national CF Associations in Europe. CFE represents persons with CF and their families in Europe. It was founded at the European CF Conference in Belfast in 2003. Currently, national CF Associations from 39 European countries are member of CF Europe. CFE works in close collaboration with other international organisations and is an active partner in several European projects.
Promote and support patient-centered research
CFE brings research closer to people with CF by supporting continuous communication to all national patient organisations. CFE collaborates with key stakeholders in the field of CF research to ensure research prioritises the patient perspective. > Read more about research.
Promote the best care from a patient perspective
CFE ensures that the patient perspective is included in any future improved European Standards of Care. In addition, CFE supports its members to achieve access to the best possible care in their country by informing patients & professionals, by organising training and by lobbying on the European level, and supporting lobbying on national level. Read more about > Read more about care.
Represent and defend the interests of people with CF
CFE directly lobbies relevant stakeholders, such as the European Union and industry. It builds and develops relationships with key actors to strengthen our influencing power. Read more about > Read more about representation.
Inform member organisations and support sharing of best practice
CFE informs its members on the progress of activities in CF research, care and lobbying, as well as general information about evolutions in the CF community. In addition, CFE enables sharing of best practice by organizing workshops and learning platforms. Read more about > Read more about information.
Provide tailor-made support to members
CFE provides financial support to members wishing to attend CFE meetings and CFE workshops. It provides hands-on support in organising local or regional conferences, and local lobbying. In addition, CFE is the contact point for its members for any questions raised or support needed by members.