ECRD2020 – The conference on rare diseases happened online on 14-15 May 2020

 

The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Due to the Covid-19 pandemic, EURORDIS chose to hold its biennial conference online, instead of the beautiful city of Stockholm. CF Europe was well represented there and presented two posters!

One poster described how the Community Advisory Board measures its efficiency and successes; the second poster presented the glossary project led in collaboration with the CF Round Table of Companies:

 

 



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