Survey patient projects by ECFSPR and CF Europe
The European CF Patient Registry (ECFSPR) and CF Europe have been working closely together in the past years to increase the visibility of the ECFSPR within the CF community. Several projects have been realised to bring the data from the Registry closer to people with CF and their families, such as the At-a-Glance reports and the country-specific posters, which can be found on this website.
We are very interested in your comments and thoughts on these initiatives, and invite you to complete the following survey. It will help us to get insight in how we can improve these projects and shape any future initiatives.
Of course we are also interested in the feedback of the patients/family members/family caregivers themselves, so please spread this survey via your website, social media channels, etc. Only like this, we can obtain results that are representative of the whole CF community.