COVID-19 Update - 28th May 2020


Covid-19 (Coronavirus) has changed everyone’s daily reality raising questions and concerns within the CF community. The situation evolves very fast in Europe and across the world, and people with CF may be concerned about their health.

The ECFS and the ECFS-Patient Registry are working on the collection of sound clinical data on people with CF having been exposed to COVID-19 in Europe. Reassuring data are now available though they must be considered with caution. Indeed, the collection is on-going and the numbers will be regularly updated. The latest information can be found on the ECFS website: https://www.ecfs.eu/covid-cf-project-europe

A worldwide study was recently published on the Journal of Cystic Fibrosis. Of 40 cases of COVID-19 described in people with CF, 70% have recovered and no death was reported at the time.

> Find the lay summary of the study and a video by Rebecca Cosgriff, study author and Director of Data & Quality improvement at the UK Cystic Fibrosis Trust in the News.

In parallel, CF Europe in collaboration with EURORDIS has been collecting real world data from patients and carers. More than 760 responders throughout Europe filled in the survey! Amongst them, more than half were patients, most of the other responders were parents. Very first glimpse at the data related to treatment notably shows that more than half of patients had to cancel their rehabilitation therapies, e.g. physiotherapy sessions, whilst, fortunately, more than ¾ of responders did not experience shortage in any of their routine drugs or medicines.

 

 

CF Europe updates you regularly on the facts and the actions undertaken throughout Europe to follow up on the Covid-19 situation > Read the latest updates

Our mission

CFE is striving for a longer and better life for people with cystic fibrosis.

Our vision

CFE envisages a future where a final cure is found and access is given to all persons with Cystic Fibrosis.

Our strategy

By supporting national patient organisations and building expertise and advocacy capacity for European policy, research and care, we will drive up standards for everyone living with CF in Europe.

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