For a longer and better life with Cystic Fibrosis
Hilde de Keyser
0032 - (0)2 61 32 716
Will new technology be able to improve health outcomes and quality of life of children with Cystic Fibrosis (CF) around Europe?
European Mobile App Project launched in 2015 to improve Health and Quaity of Life of children with Cystic Fibrosis.
Horizon2020, the EU Framework programme for Research and Innovation, approved the MyCyFapp project. A consortium of researchers, clinicians, ITC experts and patient representatives, to develop MyCyFAPP, a mobile application for children with CF allowing a personalized and accurate control and monitoring of their nutritional treatment.
For the 9th time young scientists in CF met senior scientists in CF during the European Young Investigator Meeting.
Out of 64 students that submitted an abstract, 36 students participated in the EYIM 2015. Together with 10 senior scientists/clinicians they discussed CF relevant topics within the sessions, round tables and network events.
Please find the report of this event here:
Stem cells with Cystic Fibrosis have been repaired in the laboratory.
Researchers of the Dutch Hubrecht Institute and the University Medical Centre Utrecht
have been able to repair stem cells with Cystic Fibrosis. They have cut out the CFcausing
defect from intestinal stem cells and replaced it by a “healthy piece”. ‘This is
a major step in the road to cure Cystic Fibrosis. Very hopeful. Patients will not benefit
immediately, but technology is moving forward’, says Jacquelien Noordhoek, CEO of
the Dutch Cystic Fibrosis Foundation NCFS.